News

February 28, 2020February 28, 2020

Advice on Starting Nonprofit Groups for Rare and Other Diseases Focus of NORD Webinar

News

Starting a 501(c)(3) tax-exempt nonprofit isn’t easy, but the National Organization for Rare Disorders gave a few tips for those looking to begin the complex process in its Feb. 20 ... Read more

February 21, 2020March 3, 2020

Patients, Supporters Worldwide Recognizing Rare Disease Day 2020

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An abundance of events are afoot around the world to mark Rare Disease Day 2020 on Feb. 29. The activities are focused on heightening awareness about rare diseases and the ... Read more

February 14, 2020February 14, 2020

Corneal Keratitis Successfully Treated with Povidone-Iodine Solution, Case Report Finds

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A diluted povidone-iodine (PVP-I) solution successfully cured a corneal ulcer where other medications had failed, a case report found. If replicated in future studies, this result indicates that PVP-I, a ... Read more

February 12, 2020February 12, 2021

NK Triggered in Boy by Nerve Damage During Brain Surgery

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Damage to the trigeminal nerve — a large and complex nerve that controls tear production, and facial movement and sensation — during brain surgery led to neurotrophic keratitis (NK) developing in ... Read more

February 11, 2020February 11, 2020

FDA Efforts to Bring Patients into Treatment Decisions Focus of NORD Webinar

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The U.S. Food and Drug Administration (FDA), a vast government bureaucracy, employs about 17,500 people and had a budget of $5.7 billion in 2019. Yet even with its enormous resources, ... Read more

February 7, 2020February 7, 2020

With Post-Brexit Move to Amsterdam Complete, EMA Renews Rare Disease Focus

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The gleaming new Dutch headquarters of the European Medicines Agency (EMA), fronting Domenico Scarlattilaan in Amsterdam’s suburban Zuidas business district, finally opened for business last month — just over two ... Read more

January 31, 2020January 31, 2020

Blood Drops from Fingerprick Could Help to Heal Persistent Epithelial Defects, Study Suggests

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When combined with conventional treatment, using fingerprick autologous blood — blood drops collected from a sterilized fingertip — may be a more practical and cost-effective alternative to current ways of treating persistent ... Read more

January 29, 2020January 29, 2021

Corneal Neurotization Techniques Healed NK Patients

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Direct and indirect corneal neurotization — two different approaches of a surgical procedure that aims to restore nerve function in the cornea — both were able to fully heal patients ... Read more

January 24, 2020January 24, 2020

Herpes Simplex Keratitis Can Cause Significant Visual Impairment, Nepalese Study Reports

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Herpes simplex keratitis, an eye infection that develops as a result of the herpes virus, has a wide range of symptoms and can lead to significant visual impairment, a Nepalese ... Read more

January 17, 2020January 17, 2020

NGF Protein Can Block Inflammatory Signaling in the Eye, Cell Study Finds

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A protein called nerve growth factor (NGF) — which can block eye inflammation caused by infection with the herpes simplex virus — could have therapeutic applications in herpes simplex keratitis ... Read more