First, the bad news: If you’re one of the 30 million or so Americans with a rare disease, you probably have lower immunity to the novel coronavirus than most people. ... Read more
TachoSil, a spongy collagen patch that promotes healing post-surgery, was successfully used as a first-line treatment in hard-to-treat corneal defects due to neurotrophic keratitis (NK), a report of two clinical ... Read more
First, the bad news: If you’re one of the 30 million or so Americans with a rare disease, you probably have lower immunity to the novel coronavirus than most people. ... Read more
Lenses that cover the eye can be used to help treat neurotrophic keratitis in people with familial dysautonomia, a case series highlights. The series, “Case Series: Management of Neurotrophic Keratitis ... Read more
The Living Rare, Living Stronger Patient and Family Forum, originally set for May 14–16 in Cleveland, Ohio, has been postponed until July 18–20 because of the coronavirus disease COVID-19 pandemic. The ... Read more
Even with the coronavirus pandemic ravaging Europe and much of the world, patient advocate Lucia Monaco, PhD, of Italy remains confident that the Paris-based nonprofit she chairs will see the ... Read more
The number of treatments for children with rare diseases has grown over the past decade, according to a new study. However, despite the increase, nearly 7,000 rare diseases are still lacking ... Read more
Nerve growth factor eye drop treatments offer some of the best therapeutic improvements for neurotrophic keratitis (NK), with the lowest rate of recurrences and side effects across all stages of ... Read more
In recognition of Rare Disease Day Feb. 29, BioNews Services launched a social media campaign last month asking patients to describe what makes them rare. Running Feb. 7–29, the #WhatMakesMeRare ... Read more
Beginning on Feb. 29, Rare Disease Day, chapters from notable scientific books and clinical review articles covering rare disorders will be available free-of-charge from Elsevier. The offer runs through April 30, and ... Read more
