News

September 25, 2020September 25, 2020

New Stem Cell Procedure to Replace Damaged Corneas Found Safe and Feasible

News

Surgeons at Harvard Medical School have found that a technique used to replace the surface of an eye damaged by chemical burns is safe and feasible, having successfully been performed ... Read more

September 18, 2020September 18, 2020

Oxervate Leads to Long-term Restoration of Corneal Sensitivity in 3 NK Patients

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Oxervate (cenegermin) eye drops healed corneal lesions and increased corneal sensitivity over the long term in cases of hard-to-treat neurotrophic keratitis (NK), according to a recent case series. This increased ... Read more

September 11, 2020September 11, 2020

Case Report Supports Effectiveness of PROSE Lens for NK

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A specialized type of lens called a PROSE (prosthetic replacement of the ocular surface ecosystem) lens could be helpful in treating neurotrophic keratitis, a new case report suggests. The report, “Unilateral ... Read more

September 4, 2020September 4, 2020

Same But Different Photo Contest Celebrates People With Rare Diseases

News, syndicated

Same But Different, a U.K. nonprofit that uses the arts to bring communities together, is holding a calendar photography competition to raise awareness for rare diseases. Under the theme “A ... Read more

September 4, 2020September 4, 2020

Oxervate Eye Drops Repair NK Corneal Nerve Damage, Imaging Study Shows

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A non-invasive imaging technique demonstrated that, after eight weeks of treatment, Oxervate eye drops repaired cornea nerve fibers, which are damaged in people with neurotrophic keratitis (NK), according to a ... Read more

August 28, 2020August 28, 2020

Xperiome Platform Aims to Streamline Searches for Rare Diseases, Gain Patient Input

News, syndicated

Raremark, an online rare disease patient community, has launched a digital platform called Xperiome, aimed at streamlining the search for new medicines for rare disorders and incorporating more patient input ... Read more

August 21, 2020September 3, 2020

EveryLife Foundation Launches Scholarship Fund for Rare Disease Community in US

News, syndicated

The EveryLife Foundation for Rare Diseases has launched a scholarship fund in the U.S. to support individuals with rare disorders who are pursuing personal goals through training and education. The ... Read more

August 14, 2020August 14, 2020

New Streaming Channel Showcases Rare Disease Films

News, syndicated

When the COVID-19 pandemic forced the postponement of a rare disease film festival originally slated for May, its organizers set out to find a new way to bring the films ... Read more

August 7, 2020August 7, 2020

Case Series Supports Effectiveness of Cacicol for Healing Eye Ulcers

News

Treatment with Cacicol, a specialized formulation of eye drops, can lead to healing of eye ulcers in people with neurotrophic keratitis, a new study suggests. The study, “Management of corneal ... Read more

July 31, 2020July 31, 2020

Dompé Grants Tanner Pharma Exclusive Oxervate Distribution Rights in Certain Countries

News

Dompé and Tanner Pharma Group entered into an agreement for the distribution of Oxervate (cenegermin), used in the treatment of neurotrophic keratitis (NK). The agreement grants Tanner exclusive rights to distribute ... Read more